World Hemophilia Day: Sanofi Genzyme Donation Impacts Patients Across the Globe

Nearly 17,000 patients in 40 developing countries have received treatment since donations began in 2015

On World Hemophilia Day April 17th, the global bleeding disorders community united to raise awareness and understanding of hemophilia and areas of unmet needs for patients. Hemophilia is a rare, genetic bleeding disorder in which the ability of a person’s blood to clot is impaired, which can lead to bleeding episodes that can cause pain, irreversible joint damage, and life-threatening hemorrhages. Hemophilia most often occurs in boys, and there is currently no cure.

Hemophilia: A Global Public Health Challenge

The World Federation of Hemophilia (WFH) estimates that there are approximately 400,000 people living with hemophilia worldwide, with an estimated 75% having limited or no access to treatment, particularly in the developing world. People with severe hemophilia in these countries often don’t survive to adulthood due to lack of treatment i.

A Compelling Vision to Make the Impossible Possible

Sanofi Genzyme, together with its collaboration partner Sobi, continues to support the 2014 pledge to donate up to one billion international units (IUs) of clotting factor in the developing world for up to 10 years, including up to 500 million IUs to the WFH Humanitarian Aid Program over a period of five years, with an aim to significantly transform the way hemophilia care is delivered in these countries.

“The impact of this unprecedented donation is life-changing, and reflects our steadfast commitment to the global hemophilia community,” said Mouhamed Gueye, PharmD, MBA, Head of Global Medical Affairs, Rare Blood Disorders, Sanofi Genzyme. “Sanofi Genzyme is founded on the belief that it is our responsibility to help address the treatment gap that exists in the developing world and that innovative therapies are only beneficial if we can deliver them globally to the patients who need them.”

Donations to the WFH Humanitarian Aid Program began in 2015 and the impact has been far-reaching. Over 362 million IUs of clotting factor have been donated to date, providing treatment to over 16,800 patients in 40 countries. In just over three years, more than 117,000 acute bleeds have been treated and nearly 2,000 surgeries have been performed as a result of the donated product.

“Thanks to the visionary leadership of Sanofi Genzyme and Sobi, we are now able to provide a sustainable, predictable supply of factor therapy, which has drastically shifted how patients are treated in developing countries,” explained Assad Haffar, WFH Director of Humanitarian Aid. “Not only are doctors able to perform life-saving surgeries and treat acute bleeds, they can rely on these donations to treat new patients and conduct outreach programs with more confidence. This has made a tremendous difference for thousands of people in the global hemophilia community.”

This donation has greatly expanded the WFH Humanitarian Aid Program and treaters now have the peace of mind to provide treatment today and plan for tomorrow, knowing they will still have access to factor therapy in the future.

“Today, and every day, we are standing with the community to elevate awareness of hemophilia,” said Dr. Gueye. “We are proud of our legacy in and commitment to the global rare blood disorders community and will not stop our efforts until all people living with hemophilia have access to quality treatment and care, regardless of where they live.”

Sanofi Genzyme celebrated World Hemophilia Day with members of the hemophilia community, who participated in the company-sponsored Project Gratitude program across the United States. The goal of this program is to encourage members to take a moment to share what they are grateful for, such as; community, scientific innovation, and family. The company will show its support by collaborating with U.S. advocacy groups on the WFH’s Light It Up Red campaign by illuminating public landmarks across the country, including Boston’s Zakim Bridge and South Station, the Wrigley Building in Chicago, the Wells Fargo/Duke Energy Building in Charlotte, the US Bank Tower in Los Angeles, and the Richmond Science Museum in Richmond.

To learn more about Sanofi Genzyme’s commitment to rare bleeding disorders, visit To learn more about hemophilia and how to support the global hemophilia community, visit

Latest News

Black renters

New Study Reveals Landlords Consistently Discriminate Against Potential Renters With Black or Hispanic ‘Sounding’ Names

In the largest study of its kind ever conducted, researchers with the National Bureau of Economic Research have uncovered what many people of color already know when hunting for an apartment or home: most landlords consistently discriminate or harbor bias against non-white individuals looking to rent their property.  Bloomberg’s Kelsey…

book banning

American Library Association Documents 155 Attempts at Banning Books About POC or LGBTQ Issues in the Last 6 Months

In a depressing turn for anyone who thought society may have outgrown book burning or censorship of books over the last 100 years, it appears the hate-filled phenomenon is back on the rise, increasing with alarming frequency across the country. CNN’s Nicole Chavez has reported the American Library Association “has…

Novartis Chief Medical Officer John Tsai on Balancing Medical Innovations With Patient Needs

Originally published at by Elizabeth Dougherty. John Tsai is Novartis’ Head of Global Drug Development and Chief Medical Officer. Novartis Pharmaceuticals is a DiversityInc Hall of Fame company.   John Tsai’s career as a physician, and now as Head of Global Drug Development and Chief Medical Officer for Novartis, had an unlikely…

Montgomery Mayor Steven Reed

City of Montgomery, Alabama Faces $25,000 State Fine for Changing Street Named After a Confederate Leader

Despite a state law designed to “protect” longstanding Confederate monuments and memorials, the city of Montgomery, Alabama, has decided that it would rather incur a fine than continue going on with a city street named after President of the Confederate States from 1861 to 1865, Jefferson Davis. Kim Chandler of…

Global Diversity

Despite Massive Uptick in Global DEI Initiatives, New Study Reveals Real Change in Corporate Workforces Remains Slow 

Even though DEI as a business imperative continues to grow both in the United States and around the world, a new study has found that many business leaders and executives have merely raised awareness of why diversity, equity and inclusion is important — as opposed to actually making meaningful progress…

Novartis Collaborates With Microsoft To Innovate Medicine Through Data and Artificial Intelligence

Originally published on LinkedIn. Novartis Pharmaceuticals is a DiversityInc Hall of Fame company.   “We are not just discoverers. We actually create molecules that have never been made before.” Says Karin Briner, Head of Global Discovery Chemistry at Novartis Institutes for BioMedical Research (NIBR). By collaborating with Microsoft and augmenting the expertise of our…

Mastercard Announces Launch of Crescent City Card Program in Partnership With New Orleans and MoCaFi

Originally published at Mastercard ranked No. 5 on The DiversityInc Top 50 Companies for Diversity list in 2021.   New Orleans Mayor LaToya Cantrell was joined by executives from Mastercard, Mobility Capital Finance, Inc. (MoCaFi), and Forward Together New Orleans to announce the Crescent City Card Program. The program involves a…

Mastercard on Supporting Inclusive and Sustainable Urban Development by Expanding Its ‘City Possible’ Network

Originally published at Mastercard ranked No. 5 on The DiversityInc Top 50 Companies for Diversity list in 2021.   Mastercard has continued to expand its support for addressing urban challenges and inequalities, working with city leaders and partners around the world, through the City Possible™ network and capabilities. The unique solutions…