Novartis Partners With Asia Pacific Patient Innovation Summit To Publish Study Examining Gaps in Patient Organizations

Originally published at novartis.com. Novartis Pharmaceuticals is a DiversityInc Hall of Fame company.

 

The Asia Pacific Patient Innovation Summit (APPIS) has published its first whitepaper that examines the regional landscape for patient organizations and explores existing capability-building gaps. The patient community-led report, ‘Partnering with patient organizations to address the unmet needs of patient communities in the Asia Pacific region and beyond, aims to enable a greater understanding and recognition of the seminal role of patient organizations and the patient voice in shaping the future of healthcare, while providing a series of recommendations for patient groups:

  • Build sustainable funding models, maximize key channels of funding, and use technology to reach new audiences, given that 83% of patient organizations surveyed noted that sustainable funding was a challenge.
  • Embrace digitalization and social media to raise disease awareness (as reported by 82% of patient organizations) and improve access to health news and information (79%).
  • Build strong relationships with key stakeholders through partnerships and collaboration.

Co-created by the APPIS Steering Committee, representing leading regional patient organizations and Novartis, the whitepaper leverages the results of a survey conducted to better understand the needs and capabilities of patient groups in the region. The survey captures the perspectives of 147 interviewees from patient organizations’ Boards and leadership teams, across 12 countries and territories in the Asia Pacific region and beyond.

Dr. Ratna Devi, Board Chair of the International Alliance of Patients’ Organisations and APPIS 2021 Steering Committee Chair commented, “This is an important initiative for patient organizations in the region. I hope that the whitepaper will provide a greater understanding and recognition of the seminal role of patient organizations. We want to start conversations that will eventually lead to changes in practice and policy to give patients a bigger voice at the table in healthcare discussions.”

“We aim to bring our Commitment to Patients and Caregivers to life in this part of the world by strengthening our partnerships with the patient community. Only by working together can we extend and improve people’s lives by continuing to improve the standards of healthcare and elevating the patient experience”, said Ruth Kuguru, Head of Patient Engagement and Communications for Asia Pacific, Middle East and Africa of Novartis and member of the APPIS 2021 Steering Committee.

 

APPIS: An initiative led by patient organizations for patient organizations

APPIS is a unique collaborative partnership between Novartis and the patient community that aims to address the evolving capability needs of patient organizations and to drive changes in healthcare systems in Asia Pacific and beyond. Held in March 2021, the inaugural region-wide Summit saw over 880 participants throughout the three-day event, representing more than 300 patient organizations across 36 countries and territories, including Australia, India, mainland China, Japan, South Korea, Taiwan, Thailand, Philippines, UAE, South Africa, Egypt, Saudi Arabia, and so on.

Funded by Novartis and led by patient organizations, the APPIS Initiative is continuing to engage the patient community via ongoing capability modules offered by APPIS partners – Rare Cancers Australia (RCA) and the European Patients’ Academy on Therapeutic Innovation (EUPATI).

To read the APPIS study, click here.

Latest News

Black renters

New Study Reveals Landlords Consistently Discriminate Against Potential Renters With Black or Hispanic ‘Sounding’ Names

In the largest study of its kind ever conducted, researchers with the National Bureau of Economic Research have uncovered what many people of color already know when hunting for an apartment or home: most landlords consistently discriminate or harbor bias against non-white individuals looking to rent their property.  Bloomberg’s Kelsey…

book banning

American Library Association Documents 155 Attempts at Banning Books About POC or LGBTQ Issues in the Last 6 Months

In a depressing turn for anyone who thought society may have outgrown book burning or censorship of books over the last 100 years, it appears the hate-filled phenomenon is back on the rise, increasing with alarming frequency across the country. CNN’s Nicole Chavez has reported the American Library Association “has…

Montgomery Mayor Steven Reed

City of Montgomery, Alabama Faces $25,000 State Fine for Changing Street Named After a Confederate Leader

Despite a state law designed to “protect” longstanding Confederate monuments and memorials, the city of Montgomery, Alabama, has decided that it would rather incur a fine than continue going on with a city street named after President of the Confederate States from 1861 to 1865, Jefferson Davis. Kim Chandler of…

Global Diversity

Despite Massive Uptick in Global DEI Initiatives, New Study Reveals Real Change in Corporate Workforces Remains Slow 

Even though DEI as a business imperative continues to grow both in the United States and around the world, a new study has found that many business leaders and executives have merely raised awareness of why diversity, equity and inclusion is important — as opposed to actually making meaningful progress…

Novartis Collaborates With Microsoft To Innovate Medicine Through Data and Artificial Intelligence

Originally published on LinkedIn. Novartis Pharmaceuticals is a DiversityInc Hall of Fame company.   “We are not just discoverers. We actually create molecules that have never been made before.” Says Karin Briner, Head of Global Discovery Chemistry at Novartis Institutes for BioMedical Research (NIBR). By collaborating with Microsoft and augmenting the expertise of our…

Mastercard Announces Launch of Crescent City Card Program in Partnership With New Orleans and MoCaFi

Originally published at mastercard.com. Mastercard ranked No. 5 on The DiversityInc Top 50 Companies for Diversity list in 2021.   New Orleans Mayor LaToya Cantrell was joined by executives from Mastercard, Mobility Capital Finance, Inc. (MoCaFi), and Forward Together New Orleans to announce the Crescent City Card Program. The program involves a…

Mastercard on Supporting Inclusive and Sustainable Urban Development by Expanding Its ‘City Possible’ Network

Originally published at mastercard.com. Mastercard ranked No. 5 on The DiversityInc Top 50 Companies for Diversity list in 2021.   Mastercard has continued to expand its support for addressing urban challenges and inequalities, working with city leaders and partners around the world, through the City Possible™ network and capabilities. The unique solutions…

Rep. Ilhan Omar

Colorado Rep. Lauren Boebert Makes Anti-Muslim Comments Against Fellow Rep. Ilhan Omar of Minnesota

Following the horrific example of Rep. Paul Gosar of Arizona, who posted an animated video depicting the killing of his congressional colleague Alexandria Ocasio-Cortez, another member of the House of Representatives has made a similarly vile attack on a co-worker based purely on her religious beliefs. James Anderson of the…