Disability Is a Civil-Rights Issue
By Toby Olson. Date Posted: November 15, 2006
This article was published in the
Seattle Post-Intelligencer on October 25, 2006 and is reprinted with
permission.
Each October we celebrate National
Disability Employment Awareness Month, yet we have made little or no progress
toward initiating the open, mature public dialogue essential to improving public
awareness on disability. As a result, we continue to endure the human and
economic costs inflicted by attitudes and policies shaped by widely held, but
false, assumptions and myths.
As things stand now, the general
public is consistently, spectacularly wrong in nearly every truth it holds dear
about the experience of life with a disability.
When I say that to someone, that
person usually will look sad and thoughtful and nod in agreement, and I'll know
that person is thinking, "He's right; I couldn't possibly imagine how horrible
it must be."
Let me tell you, every one of us
has much more than enough experience imagining how horrible it must be, and if
our imaginations were ever to fail us in this regard, we could always count on
Hollywood to shovel out yet another overblown, melodramatic, cliché-riddled
treatment to help us along. What the general public is unprepared to imagine is
just how wonderful, rewarding and full of accomplishment life with a severe
disability usually is.
There have been dozens of studies
that have shown not just a disconnect but rather an immense chasm--we're talking
the Grand
Canyon
here--between the popular assumptions and the actual experiences of people with
disabilities. One of the earlier studies compared overall satisfaction and
happiness rates for people with paraplegia and people who had won the lottery,
and found not much difference. I buy lottery tickets, and I see this as very
good news. Since my odds of having a spinal-cord injury are much better than
they are for picking those winning numbers, it's good to know that either way,
once I make it through the disruptive process of adjustment to the dramatic
changes in my life, I'll probably end up being about as happy as I am right now.
The kinds of things that the
popular perception of the experience of significant disability consistently and
spectacularly underestimates include: what we can do; how happy we are; our
level of self-esteem and virtually every other measure of competence,
productivity and quality of life.
All of this plays well for
telethons, personal-injury suits and other efforts to tug at heartstrings to
loosen purse strings, but it's a real disadvantage in any endeavor that requires
being accepted as a competent, functioning adult. Some examples include
applying for a job, trying to get
a date, rent an apartment, preserve parental rights or help someone else
understand that disability is first and foremost a civil-rights issue.
We must develop a public dialogue
that actively challenges the preconceptions and stereotypes about people who
have disabilities, forces an examination of those beliefs and replaces them with
beliefs informed by the actual experiences of people with disabilities. In other
words, we need to talk.
We need to talk about the backlash
currently directed against the Americans with Disabilities Act. We need to talk
about why the only right of a person who has a disability that seems to be
capable of commanding the public's attention and inspiring the media is the
right to die.
We need to be talking about why
there remains so much distance and misunderstanding between the
disability-rights movement and its progenitors, those earlier civil-rights
movements that by their example taught people with disabilities how to
understand the nature of our predicament and provided us with the model for
redressing it.
Because of the failure to develop
this discourse, myths about disability are so uncritically accepted as common
knowledge that they nearly crowd all serious discussion of the reality of the
experience of disability from the mainstream marketplace of ideas.
Most of us know people with
disabilities who are going about their lives, working, supporting themselves and
their families and actively contributing to the diversity and vitality of our
communities. But these examples can be before us on a daily basis and have
surprisingly little impact on our preconceptions. We accommodate our stereotypes
by perceiving such people to be something extraordinary. We need to challenge
that. We should not see people with significant disabilities who have achieved
some measure of satisfaction and success as brave, heroic or inspirational. Such
people should be the norm. Such people should be exactly what we expect.
Instead, we should be looking at
the lives of people with disabilities who have been denied those experiences and
asking what went wrong.
Toby Olson is the Executive
Secretary of the Washington State Governor's Committee on Disability Issues and
Employment.
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